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RWCA Title IV Consumer Research Training March 23-25, 2007

Date: 03/2007
Source: National Resource Center

These presentations are from the first of 2 workshops for HIV affected or infected consumers to learn about research. The goal of the workshops is to prepare consumers to serve as a resource for other community members by building knowledge and understanding of clinical research and related issues. Participants gain knowledge and skills to participate in the protocol development process, to critically evaluate protocols and results of clinical trials from the community viewpoint, and to communicate accurately and clearly to community members about research.

Once trained, participants will act as liaisons between the community and researchers in order to assess the concerns and needs of the community. They will translate these concerns and needs into research questions and will communicate directly with researchers. Participants at the first training were encouraged to form a network with other workshop trainees. Fifteen consumers from RWCA Title IV programs around the country participated in the training, funded by the HIV/AIDS Bureau (HAB), Health Resources and Services Administration (HRSA). Part two of this training will be conducted in June 2007.

For additional information contact Dr. Pamela Rothpletz-Puglia at rothplpm@umdnj.edu

dot Pediatric AIDS Clinical Trial Group (PACTG) Protocol 076 and Strategies for Management of Antiretroviral Therapy (SMART) Study
File Information: PPT 821 KB
Date: 03/2007

Description: Note: 15 slides.

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dot What is Research and Why is Community Involvement Important?
File Information: PPT 1.08 MB
Date: 03/2007

Description: Note: 23 slides.

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dot Introduction to Research Development and Implementation
File Information: PPT 794 KB
Date: 03/2007

Description: Note: 15 slides.

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dot Clinical Trials
File Information: PPT 920 KB
Date: 03/2007

Description: Note: 18 slides.

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dot Sources of Health and Research Information
File Information: PPT 147 KB
Date: 03/2007

Description: Note: 6 slides.

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dot Historical Context of Protecting Participants in Research
File Information: PPT 170 KB
Date: 03/2007

Description: Note: 22 slides.

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dot Community Participation in Research
File Information: PPT 438 KB
Date: 03/2007

Description: Note: 24 slides.

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dot Protecting Research Participants
File Information: PPT 398 KB
Date: 03/2007

Description: Note: 15 slides.

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