Links: Symptoms and Syndromes

Acute Retroviral Syndrome/Primary HIV Infection

	Acute HIV Infection and Early Disease Research Program (AIEDRP) A program of the National Institute of Allergy and Infectious Diseases (NIAID).
	Options Project UCSF research program for acute and early HIV infection.

Cardiovascular Disease

	American College of Cardiology Professional society of more than 24,000 cardiovascular physicians and scientists from around the world. Free registration is required.
	American Heart Association Education and information on fighting heart disease.
	National Heart, Lung, and Blood Institute (NHLBI) One of the National Institutes of Health.

Dementia (AIDS Dementia Complex)

	Neurologic AIDS Research Consortium Supported by the NIH to design and implement studies of HIV-associated neurologic disease.

Depression

	The Body's Mental Health Page Articles from HIV newsletters on depression, anxiety, stress, relationships, and other mental health issues.
	Depression and Bipolar Support Alliance Education concerning the nature and management of depressive and manic-depressive illnesses. Formerly the National Depressive and Manic-Depressive Association.
	National Alliance for the Mentally Ill Grassroots, self-help and family advocacy organization solely dedicated to improving the lives of people with severe mental illnesses such as schizophrenia, bipolar disorder (manic depression), major depression, obsessive-compulsive disorder, and panic disorder.

Dermatologic Conditions

	American Academy of Dermatology Professional and patient information.
	DermIS A project of the University of Heidelberg and the University of Erlangen, DermIS features extensive online atlases of dermatology images.
	DermNet New Zealand Dermatological Society. Information on numerous skin conditions.
	National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) One of the National Institutes of Health.

Fatigue

	CancerSymptoms.org Includes tips on managing cancer-related fatigue (and fatigue in general). From the Oncology Nursing Society.
	CDC Chronic Fatigue Syndrome Homepage Information on fatigue management strategies.
	CFIDS Association of America Non-profit organization dedicated to Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS), also known as Chronic Fatigue Syndrome(CFS). Information on fatigue management strategies.

Immune Thrombocytopenic Purpura (ITP)

	Platelet Disorder Support Association Information on ITP and treatments, as well as discussion for people with platelet disorders.

Lipid Metabolism Abnormalities/Lipodystrophy

	FacialWasting.org Site on HIV-related facial wasting and options for its treatment, from nonprofit community-based organization.
	Workshop on Adverse Drug Reactions and Lipodystrophy in HIV Lipodystrophy conference information.
	LIPID LIST. Moderated email list to discuss metabolic complications seen in HIV disease. To subscribe send an email to listproc@critpath.org (the body of your message should contain "subscribe lipidlist firstname lastname".)
	YAHOO POZHEALTH LIST. Moderated email list to discuss HIV-related metabolic complications. To subscribe, go to http://groups.yahoo.com/group/PozHealth .

Neuropathies

	Neurologic AIDS Research Consortium Supported by the NIH to design and implement studies of HIV-associated neurologic disease.
	The Neuropathy Association Information and care & support referrals for neuropathy. Registration (free) is required.
	The Neuropathy Trust UK-based neuropathy information and support organization.

Pain

	American Academy of Pain Medicine Organization for physicians practicing the specialty of Pain Medicine in the United States.
	American Pain Foundation A patient information, education and advocacy organization serving people with pain.
	American Pain Society A multidisciplinary educational and scientific organization dedicated to serving people in pain.
	Pain.com Commercial site with professional and patient resources. Ask questions of pain doctors, get news, search pain library.

Psoriasis

	National Psoriasis Foundation (U.S.) Information on psoriasis and psoriasis treatments.

Renal Disease/HIV-Associated Nephropathy (HIVAN)

	American Association of Kidney Patients Exists to serve the needs, interests and welfare of all kidney patients and their families.
	End Stage Renal Disease (ESRD) Networks Forum Liaisons between the federal government and the providers of ESRD services.
	National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) One of the National Institutes of Health.
	National Kidney Foundation Research, public policy, and advocacy organization that seeks to prevent kidney and urinary tract diseases, improve the health and well-being of individuals and families affected by these diseases, and increase the availability of all organs for transplantation.
	United Network for Organ Sharing (UNOS) Nonprofit organization that maintains the organ transplant waiting list in the United States. Site includes information on renal transplant issues.
	United States Renal Data System Collects, analyzes, and distributes information about end-stage renal disease (ESRD) in the United States.

Rheumatic Conditions

	American Autoimmune Related Diseases Association US national organization dedicated to addressing the problem of autoimmunity.
	American College of Rheumatology Professional organization of rheumatologists and associated health professionals.
	International League of Associations for Rheumatology Information on numerous rheumatic conditions, worldwide links to regional associations, and more.
	National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) One of the National Institutes of Health.

Sinusitis

	American Academy of Otolaryngology - Head and Neck Surgery An organization of physicians dedicated to the care of ear, nose and throat disorders. Includes sinus information for patients.
	American Rhinologic Society Promoting excellence in clinical care, investigation, and education in the field of rhinology and sinusology.
		Patient Information on Sinusitis

Wasting Syndrome/Weight Loss

	Medibolics Website devoted to preserving weight and lean body mass in people with HIV. Includes extensive information on use of anabolic steroids for HIV wasting.
	Program for Wellness Restoration (PoWeR) Information-based treatment and research advocacy organization which disseminates information to patients and physicians about a comprehensive, state-of-the-art approach to AIDS wasting management, prevention and reversal.
		FacialWasting.org Companion site on HIV-related facial wasting and options for its treatment.

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