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Support Services
End of Life: Information for Caregivers
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Date Created/Most Recent Revision: 1996
Last Reviewed by NRC: November 9, 2000
Authors and Affiliations: Harlee Kutzen, RN, BSN, Taryn Lindhorst, BCSW, Delta Region AIDS Education and Training Center.
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Target Audience: General Population Living with HIV
Language: English
Reading Level: 10th grade
Type of Material: booklet
Publisher: Delta Region AIDS education and Training Center, funded by HRSA
Copyright: Yes Copyrighted (Harlee Kutzen)
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This booklet is designed for caregivers of people in the late stages of a terminal illness. It describes the changes that occur as they approach death and suggestions for the caregiver to assist in comforting them through this process. The information covered in this booklet includes changes in strength, vision, breathing, sleep and attention. The booklet also prepares the caregiver on what steps to take after the person has died.
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The reviewers said this piece is very helpful to people taking care of someone with a terminal illness. Reviewers said the suggestions for the caregivers are "very practical, specific and informative." They also noted that the style of language used in this piece is "comforting" and "easy to understand." One reviewer said that most caregivers are "dealing with this for the first time," the piece will help them sort out "their grief issues as well as understand what to expect." The reviewers recommend this piece be distributed by counselors and case mangers that are working closely with the families in community organizations, hospices, hospitals or churches.
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Call Toni Newton to request and order form
(504)-568-3369
Permission to Reproduce: No
Permission to Distribute: No
Cost per copy: $3.00/ copy
Shipping Cost: N/A
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