Consumer Review

Careful attention has been paid to ensure that consumer reviewers are representative of the diversity of regions and communities throughout the country. National, state and local consumer organizations assist the NRC in identifying consumer reviewers. Consumers from across the country are engaged on an ongoing basis through contacts with national, state and local consumer organizations. The agencies listed below are each assisting the NRC to network with local consumer organizations and consumers across the country to identify volunteers to review NRC patient education materials. It is important to note that consumer reviews represent the opinions of the individuals as persons living with HIV and not those of the agencies listed below. The agency descriptions were excerpted from agency websites with permission or, were submitted from the agency liaison to the NRC:

"The AIDS Treatment Data Network (The Network) is an independent, national, not-for-profit organization that provides AIDS treatment information, counseling, case management and advocacy services to people with AIDS and their providers. The nationwide toll-free number is (800) 734-7104. All materials and frequently updated information are available at www.aidsinfonyc.org."

"Community Research Initiative on AIDS (CRIA) is an independent, non- profit, community-based AIDS research and treatment education organization dedicated to improving the length and quality of life for people living with HIV/AIDS. CRIA studies new treatments for HIV and HIV-related conditions through its clinical research. CRIA may be contacted at the following: 230 West 38th Street, 17th Floor, New York NY 10018, phone: 212-924-3934, fax: 212-924-3936 or the following website: www.criany.org."

"The National Minority AIDS Council (NMAC) provides technical assistance to Community Based Organizations to support the long-term health of these agencies, focusing on management; provides in-depth training and conference opportunities to AIDS service organizations across the country; provides treatment education and training and advocates for the proper and speedy development and access to AIDS treatments. NMAC may be contacted at: 1931 13th Street, N.W., Washington, DC 20009; phone: (202) 483-6622; fax: (202) 483-1135; or e-mail: info@nmac.org."

"The National Association of People With AIDS (NAPWA) ongoing mission is to educate, inform, and empower all people living with HIV and AIDS. NAPWA's conferences, trainings and support services are intended to create, promote, and maintain effective community leaders in the fight against HIV and AIDS. NAPWA may be contacted at any of the following: phone: 202/898-0414; fax: 202/898-0435; mail: NAPWA, 1413 K Street, NW 7th Floor, Washington, DC 20005; e-mail: General Information: napwa@napwa.org/ Webmaster: jmbrevelle@napwa.org."

"Project Inform is a national non-profit, community based organization working to end the AIDS epidemic. Its mission is to: provide vital information on the diagnosis and treatment of HIV disease to people living with HIV, their caregivers, healthcare and service providers; Contact information for Project Inform: Phone: 415-558-8669: Fax: 415-558-0684: Web Site: www.projectinform.org: 205 13th Street #2001, San Fransisco CA 94103."

"Center For AIDS (CFA) dedicates itself to providing the latest treatment and research information to persons with HIV/AIDS, their caregivers and healthcare providers. The Center acts as a catalyst for the creation and the establishment of innovative HIV/AIDS research in Houston and advocates for the entire affected population, ensuring that Houston's regional needs are factored into the national dialogue about HIV/AIDS. Contact Information for CFA: Toll Free: 888.341.1788, Phone: 713.527.8219, Fax: 713.521.3679 E-Mail: rita@centerforaids.org P.O. Box 66306,Houston, TX 77266-6306."

"T.O.U.C.H. (Teens Offering Understanding and Compassion for HIV/AIDS) The T.O.U.C.H. program is a non- profit, grass roots community project that offers training to teens in Albany County, New York interested in becoming teen peer educator and volunteering with families infected and affected by HIV/AIDS. T.O.U.C.H. also provides monthly respit services to families living with HIV/AIDS. Contact information: Phone: Jennifer Parr (518)-489-1975, Jenprr@aol.com."