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participating institutions:
Johns Hopkins University AIDS Service, New York State DOH AIDS Institute, The CORE Center, Cook County Hospital



PATIENT EDUCATIONAL MATERIALS:
REVIEWED AND ENDORSED


 

Reviewed and Endorsed Materials

Support Services

Title: "End of Life: Information for Caregivers"

Author(s) and Affiliations: Harlee Kutzen, RN, BSN, Taryn Lindhorst, BCSW, Delta Region AIDS Education and Training Center.

Target Audience: General Population Living with HIV

Topic: Mental Health

Reading Level (SMOG Test): 10th grade

Language: English

Synopsis/Description: This booklet is designed for caregivers of people in the late stages of a terminal illness. It describes the changes that occur as they approach death and suggestions for the caregiver to assist in comforting them through this process. The information covered in this booklet includes changes in strength, vision, breathing, sleep and attention. The booklet also prepares the caregiver on what steps to take after the person has died.

Synopsis of NRC Consumer Reviews: The reviewers said this piece is very helpful to people taking care of someone with a terminal illness. Reviewers said the suggestions for the caregivers are "very practical, specific and informative." They also noted that the style of language used in this piece is "comforting" and "easy to understand." One reviewer said that most caregivers are "dealing with this for the first time," the piece will help them sort out "their grief issues as well as understand what to expect." The reviewers recommend this piece be distributed by counselors and case mangers that are working closely with the families in community organizations, hospices, hospitals or churches.

Date of Most Recent Revision/ Update: 1996

Next Planned Update: Not available

Publisher: Delta Region AIDS education and Training Center, funded by HRSA

Copyright Information: Copyrighted (Harlee Kutzen)

Permission to Reproduce? No Permission to Distribute? No

Type of Material: Booklet

Style and Format
Text
21 pages
Tables
0
Figures 0
Color Yes
Other Graphics No

Cost per copy: $3.00/ copy Multiple copies: Price will vary depending on amount order Shipping Cost: N/A

Ordering Contact: Call Toni Newton to request and order form (504)-568-3369




Copyright © 2001-2002. The National AIDS Education and Training Centers Program on behalf of its AETC National Resource Center. All rights reserved.

Physicians and other health care professionals are encouraged to consult other sources and confirm the information contained in this site because no single reference or service can take the place of medical training, education, and experience. Consumers are cautioned that this site is not intended to provide medical advice about any specific medical condition they may have or treatment they may need, and they are encouraged to call or see their physician or other health care provider promptly with any health related questions they may have.