NRC/AETC: Educational:Patient

The National Resource Center posts all patient education materials that successfully complete a three-step review process. Information about the materials, the outcome of the review, downloadable copies and ordering information is available below.

The National Resource Center is always looking to add more quality materials to the site. If you are interested in seeing your material on this site , we encourage you to submit that material for review.

REVIEWED & ENDORSED MATERIALS BY TOPIC

Adherence

Alternative Therapies

Antiretroviral Therapy

Case Management

Clinical Trials/Research

Non-Clinical Materials

Nutrition & Food Safety

Opportunistic Infections

Oral Health

Other

Pediatrics

Postexposure Prophylaxis

Support Services

Treatment & Approach

Women & Children

PATIENT EDUCATION MATERIALS SUBMISSION PROCESS

Patient education material may be submitted for review to the AETC National Resource Center at the New York State Department of Health AIDS Institute (NYSDOH/AI).

Printed materials may be mailed to:

NYSDOH AIDS Institute,
ESP Corning Tower, Room 259
Albany, NY 12237-0658
Attention: Ms. Jennifer Parr, NRC Coordinator.

Please download the submission form and send the completed form along with your submission to the address above.

Electronic submissions:
Materials may also be submitted electronically to Ms. Jennifer Parr at: Jlp01@health.state.ny.us Materials may be submitted in either Word, WordPerfect, PowerPoint, or Adobe Portable Document File (.PDF) formats. URLs to web sites containing the material are also acceptable. Please download the submission form and send the completed form along with your submission to the e-mail address above.

Please note that the following material will not be reviewed as part of the NRC patient education materials initiative: (1) Materials overtly promoting, for the purposes of profit, a drug or drug(s) for the treatment of HIV to the exclusion of other, comparable drugs; (2) Outdated versions of material that has since been updated or has already entered the NRC review process; or (3) resource lists - national, state or local; magazines, newsletters or other regularly published bulletins for patients; or publications promoting or advertising health services, support groups, etc.

Inquiries:
All inquiries regarding materials submission, review and posting should be directed to Ms. Jennifer Parr, M.P.H., NRC Coordinator by phone at: (518) 474-3459 or e-mail at: jlp01@health.state.ny.us

PATIENT EDUCATION MATERIALS REVIEW PROCESS

The AETC National Resource Center (NRC) feels that effective communication is critical to promote patient participation in treatment decisions, improving patient compliance with complex treatment regimens and achieving maximal health benefits. Therefore, NRC is dedicated to identifying, reviewing and increasing accessibility of high quality patient education materials that are useful tools for providers and their patients.

The three-step patient education material review process places emphasis on evaluations from persons living with HIV/AIDS and scientific and technical review by experts in the field of HIV/AIDS treatment and care. Materials successfully completing all stages of review are posted in the Patient Education Resources section of the NRC website.

Content Review:
This is conducted by professionals in the field of HIV/AIDS treatment and care. Content reviewers include: Physicians, Nutritionists, Nurse, Case Managers and Educators.

Content review criteria includes:
- Scientific accuracy
- Currency
- National scope

Administrative Review:
This step is conducted by the NRC Patient Materials Coordinator. The administrative review includes a reading level assessment using the SMOG test to assign a grade level or reading difficulty level to the material. It also provides information about the development of each material and its availability and/or ordering information.

Consumer Review:
This review is conducted by persons living with HIV from across the country and may take place in various forums - by phone interviews; in person interviews; written questionnaires; or focus groups. Three consumers review each material. This step evaluates the materials relevance, usefulness, readability by the target audience and effectiveness among target audience.

For more detailed information about the review process, or to request a copy of the evaluation forms, contact the NRC Coordinator at the NYS Department of Health AIDS Institute by e-mail at: jlp01@health.state.ny.us or by phone at: (518) 474-3459.

Organizations are encouraged to submit materials for review. Please follow the link "directions for submitting materials" or call the New York State Department of Health AIDS Institute at (518) 474-3459.

Physicians and other health care professionals are encouraged to consult other sources and confirm the information contained in this site because no single reference or service can take the place of medical training, education, and experience. Consumers are cautioned that this site is not intended to provide medical advice about any specific medical condition they may have or treatment they may need, and they are encouraged to call or see their physician or other health care provider promptly with any health related questions they may have.